patient.info has some good information on triggers for mast cell diseases, including mastocytosis and mast cell activation syndrome (and histamine intolerance).
histamine-intolerance.info has some good low-histamine diet information. If you suffer from allergies, mast cell disease (including mastocytosis and mast cell activation syndrome), and possibly other illnesses like chronic fatigue syndrome and fibromyalgia, this is worth learning about.
For the first time in a long time, I was able to walk one mile on Saturday.
I like listen to Eye of the Tiger as I am able to start practicing yoga again, but Coming Out of the Dark by Gloria Estefan is another great “comeback” song for the rest of the day:
This article, A concise, practical guide to diagnostic assessment for mast cell activation disease (MCAD), pretty much describes what I have been going through for the last several years.
In retrospect, mast cell activation syndrome (MCAS) (or mastocytosis) explains many mysterious health problems. For example, six years ago I took a routine blood test and my doctor found that my Vitamin D level was extremely low, even though I was out in the Sun every day and took a multivitamin supplement, in addition to drinking milk and eating a lot of cheese. Then last year I told my doctor that on four occasions it felt like bones in my feet, hands, and arm had broken spontaneously, but she just looked at me like I was crazy.
A friend wrote these words today:
“Loaded accusatory silence”
It’s a beautiful phrase, and it refers to people making assumptions about what other people are thinking or doing. Rather than talk to those people to find out what’s really going on, they accuse them in their own minds (and also judge them to be guilty).
(The word “judgmental” comes to mind.)
Facebook tells me that I was having health problems three years ago, when I posted the attached image, and this text: “My heart has been dancing to the beat of its own drummer again lately, so rather than sleep at night I've been listening to the coyotes and watching movies. These were all good. You Kill Me cracks me up.”
One way to describe what I was going through was “brain fog,” or having difficulty thinking clearly, articulating my thoughts, and remembering anything. This quote comes from the mastocytosis.ca web page:
“When the symptoms occur, it is common for patients to have difficulty thinking clearly ... mast cells are in every organ including the brain.”