2015

Self-administering intravenous medicine with a PICC Line

April 24, 2015: I don’t know how you spend your mornings, but these days I spend 40 minutes each morning administering intravenous medicine to myself via a PICC Line that has been inserted/installed in my arm and chest. You can read about the whole experience in my diverticulitis diary if you’d like.

(April 24, 2017: Today marks the 11th consecutive month that I haven’t required a trip to the ER, which is pretty much a record for my last four years.)

Feeling like I have been drugged

When I was very sick in 2015-2016, I used to tell my doctors it felt like I had been “drugged.” When I could see that they couldn’t understand or believe that, I’d tell them that it felt the way you feel after surgery, groggy and woozy.

For the most of this year I’ve been eating very well, but yesterday I went to see a movie (Logan) and had some popcorn. Shortly after eating the popcorn I started to feel sick, and today I feel like I’ve been drugged.

This — as I have learned — is life with mast cell activation disease, known as MCAD or MCAS.

Why do I keep misplacing things?

“I don’t understand, why do I keep losing things?”

“This is a dream,” Bec said. “Things have a way of coming and going.”

“Oh yeah, right, right,” I said, gently poking the chair next to me like Monk. “It always seems so real.”

“Do you need to get some sleep?”

“No, I’m good now. I just got lost in it for a moment. Let’s do something.”

“Like what?”

And thus the adventure began ...

(A little story based on a dream from March 12, 2015.)

Lil iMac - 120 days later

As an indicator of how weird my life has been lately, back on December 1, 2015 I bought a new, little iMac. The most important things in my life at that time were that I wanted to be able to run Sarah, and I wanted to be able to run a series of new stock market apps I had written, and my old 2007 iMac wasn’t cutting it any more.

Then my mom had an accident and ended up in the hospital for eleven days with a head injury. Then I ended up in the hospital myself. She was on the 3rd floor and I was on the 4th floor, or vice-versa, I don’t remember, I was pretty out of it. After that there was a long series of doctors’ appointments and tests. Now, about 120 days later, Lil iMac still sits there in its original box. Funny how priorities can change so fast.