thyroid cancer

Getting Thyrogen is hard (if not impossible)

As I’ve learned over the last several months, getting Thyrogen for thyroid cancer treatment can be extremely hard, if not impossible or incredibly expensive. These nine pages of notes to my doctor, my insurance company (Blue Cross/Blue Shield), specialty pharmacies like AllianceRx (Walgreens), Accredo, CVS specialty pharmacy, and the Thyrogen manufacturer, over a period of five weeks demonstrates how hard it is to get Thyrogen when you need it.

After going through all of this, my best suggestion is that if you’re having a hard time getting Thyrogen for your thyroid cancer treatment, call the people at thyrogen.com (ThyrogenOne). Because a lot of patients have a hard time getting Thyrogen, they seem to understand the process better than anyone, including my doctor’s office and my insurance company.

Radioactive iodine treatment instructions (for thyroid cancer) alvin June 25, 2019 - 10:41pm

For anyone interested in the radioactive iodine treatment instructions I received from the hospital back in 2014 (for the post-surgical treatment of thyroid cancer)(which I’ll be going through again), here you go. As I note in the image, as a writer I appreciate the strong finish. :)

That phone call you never want to get

After a routine phone blood test I got an unexpected phone call from a doctor last night. You know, that phone call you never want to get from a doctor. That one.

“You have cancer”

A few people I’ve talked to recently who have (or had) cancer told me they can clearly remember the moment when their doctor told them that they had cancer.

In my case I do remember the conversation with the doctor, but that was more of a formality. When I picked up the phone to talk to her, I already had a pad of paper and a pencil in hand, and I was ready to write down the details she was going to tell me. Because in my case I was pretty certain that I had cancer when I saw the ultrasound results a few days earlier.