treatment

Getting Thyrogen is hard (if not impossible)

As I’ve learned over the last several months, getting Thyrogen for thyroid cancer treatment can be extremely hard, if not impossible or incredibly expensive. These nine pages of notes to my doctor, my insurance company (Blue Cross/Blue Shield), specialty pharmacies like AllianceRx (Walgreens), Accredo, CVS specialty pharmacy, and the Thyrogen manufacturer, over a period of five weeks demonstrates how hard it is to get Thyrogen when you need it.

After going through all of this, my best suggestion is that if you’re having a hard time getting Thyrogen for your thyroid cancer treatment, call the people at thyrogen.com (ThyrogenOne). Because a lot of patients have a hard time getting Thyrogen, they seem to understand the process better than anyone, including my doctor’s office and my insurance company.

Radioactive iodine treatment instructions (for thyroid cancer)

For anyone interested in the radioactive iodine treatment instructions I received from the hospital back in 2014 (for the post-surgical treatment of thyroid cancer)(which I’ll be going through again), here you go. As I note in the image, as a writer I appreciate the strong finish. :)

MCAS treatment

A few notes from the article I linked to:

This post discusses medications used to treat MCAS. Doses listed are taken directly from “Presentation, diagnosis and management of mast cell activation syndrome” by Lawrence B. Afrin. These doses are general recommendations. Medication should always be taken under the direction of a provider who knows you and your case personally.

A diary of my first bout with diverticulitis (symptoms, testing, and treatment)

After my first-ever bought with diverticulitis, I wanted to make notes about what happened over the last five days.

Monday, April 7, 2015

On April 7, 2015, I woke up at 3:30am with pain and discomfort in my lower-left abdomen. I knew something was wrong, but I didn’t know what it was. It felt like a golf ball was lodged in there, and several hours later it was still there.

Notes on radioactive iodine treatment for papillary thyroid cancer

The next step in the process of treating my papillary thyroid cancer is a radioactive iodine treatment. I’ll be going through this treatment process in a few weeks, and this is what I know about the process today.

The radioactive iodine treatment process

From what I’ve learned from my endocrinologist, the process goes like this: