Most doctors don’t know what mast cell activation disease is

As I’ve learned in the last two months, most doctors don’t know what mastocytosis or mast cell activation disease is.

I learned that the hard way, with over fifteen ER visits in the last three years, and having seen not only my primary care physician (“I wouldn’t know what to test for”), two endocrinologists, an allergist, a hematologist, three gastrointestinal specialists (one with a focus on the liver), and others I can’t remember, in addition to all of the ER doctors.

To be clear:

1. Most doctors don’t know what mast cell activation disease is.
2. If, after learning about mast cell disease, you think this may be what your problem is, you’re going to have to find a qualified hematologist or allergist/immunologist.

If you don’t believe me, read this article on the MeAndMyMastCells.com website.