By Alvin Alexander. Last updated: June 29, 2019
Sometimes when I get really sick with the MCAS symptoms it becomes very hard for me to communicate. If I’m with someone else during those episodes and they look at me struggling I think, “I’m still Al, I’m still in here ... I just can’t get the words out.”
I think sometimes that’s the way it is for people when they get older and slow down, or have dementia, I imagine they have those thoughts as well.